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  <id>tag:dreamwidth.org,2009-04-17:86396</id>
  <title>Fibromyalgia</title>
  <subtitle>Fibromyalgia</subtitle>
  <author>
    <name>Fibromyalgia</name>
  </author>
  <link rel="alternate" type="text/html" href="https://fibro.dreamwidth.org/"/>
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  <updated>2013-11-05T04:06:47Z</updated>
  <dw:journal username="fibro" type="community"/>
  <entry>
    <id>tag:dreamwidth.org,2009-04-17:86396:2062</id>
    <author>
      <name>(re)becka</name>
    </author>
    <dw:poster user="violenthaiku"/>
    <link rel="alternate" type="text/html" href="https://fibro.dreamwidth.org/2062.html"/>
    <link rel="self" type="text/xml" href="https://fibro.dreamwidth.org/data/atom/?itemid=2062"/>
    <title>Hot Yoga</title>
    <published>2013-11-05T04:06:47Z</published>
    <updated>2013-11-05T04:06:47Z</updated>
    <dw:security>public</dw:security>
    <dw:reply-count>0</dw:reply-count>
    <content type="html">Posted by: &lt;span lj:user='violenthaiku' style='white-space: nowrap; text-decoration: line-through;' class='ljuser'&gt;&lt;a href='https://violenthaiku.dreamwidth.org/profile'&gt;&lt;img src='https://www.dreamwidth.org/img/silk/identity/user.png' alt='[personal profile] ' width='17' height='17' style='vertical-align: text-bottom; border: 0; padding-right: 1px;' /&gt;&lt;/a&gt;&lt;a href='https://violenthaiku.dreamwidth.org/'&gt;&lt;b&gt;violenthaiku&lt;/b&gt;&lt;/a&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;I tried Hot Yoga for the first time a couple weeks ago, and I&amp;nbsp;could see a huge difference the next day in my pain level.&amp;nbsp; My muscles were sore, but not in a bad way. :)&amp;nbsp; I'm trying to save up some money now so that I&amp;nbsp;can go more regularly; with the cold weather, symptoms are getting worse.&amp;nbsp; Has anyone else had any luck with any forms of Yoga or stretching?&lt;br /&gt;&lt;br /&gt;&lt;img src="https://www.dreamwidth.org/tools/commentcount?user=fibro&amp;ditemid=2062" width="30" height="12" alt="comment count unavailable" style="vertical-align: middle;"/&gt; comments</content>
  </entry>
  <entry>
    <id>tag:dreamwidth.org,2009-04-17:86396:2023</id>
    <author>
      <name>Erika</name>
    </author>
    <dw:poster user="erika"/>
    <link rel="alternate" type="text/html" href="https://fibro.dreamwidth.org/2023.html"/>
    <link rel="self" type="text/xml" href="https://fibro.dreamwidth.org/data/atom/?itemid=2023"/>
    <title>two recent studies advancing fibro knowledge</title>
    <published>2013-08-12T18:47:46Z</published>
    <updated>2013-08-12T18:47:46Z</updated>
    <dw:security>public</dw:security>
    <dw:reply-count>1</dw:reply-count>
    <content type="html">Posted by: &lt;span lj:user='erika' style='white-space: nowrap;' class='ljuser'&gt;&lt;a href='https://erika.dreamwidth.org/profile'&gt;&lt;img src='https://www.dreamwidth.org/img/silk/identity/user.png' alt='[personal profile] ' width='17' height='17' style='vertical-align: text-bottom; border: 0; padding-right: 1px;' /&gt;&lt;/a&gt;&lt;a href='https://erika.dreamwidth.org/'&gt;&lt;b&gt;erika&lt;/b&gt;&lt;/a&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;For those of you who haven't heard about either of these two studies, I think this is really fascinating stuff:&lt;br /&gt;&lt;br /&gt;&lt;a href="http://medicalxpress.com/news/2013-07-faster-simpler-diagnosis-fibromyalgia-horizon.html"&gt;Researchers have developed a reliable way to use a finger-stick blood sample to detect fibromyalgia syndrome, a complicated pain disorder that often is difficult to diagnose.&lt;/a&gt;&lt;br /&gt;&lt;br /&gt;(I would insert a 'may' in that 'have developed', as in &lt;i&gt;'may&lt;/i&gt; have developed', but sure, okay.)  &lt;br /&gt;&lt;br /&gt;Pilot study was done with N[umber of patients that had] fibromyalgia (14), rheumatoid arthritis (15) and osteoarthritis (12), and the microscope got it right every time.&lt;br /&gt;&lt;br /&gt;Also interestingly enough, this study was started by a professor in veterinary science.  This is why research about all types of beings can lead to great results for humans too, as well as advancing our knowledge of the world.&lt;br /&gt;&lt;br /&gt;The next study is even more fascinating:&lt;br /&gt;&lt;br /&gt;&lt;a href="http://www.medicaldaily.com/breakthrough-fibromyalgia-research-pain-your-skin-not-your-head-246925"&gt;Breakthrough In Fibromyalgia Research: Pain Is In Your Skin, Not In Your Head&lt;/a&gt;&lt;br /&gt;&lt;br /&gt;This one is really fascinating.  I recommend you read it for yourself, but basically, they took skin biopsies from 24 women with fibromyalgia and 23 'normal' women, with usable data from 18 women with fibro and 14 women without.&lt;br /&gt;&lt;br /&gt;As far as I can figure out, what this study is basically saying is that there's an important dysfunctional difference that can be seen under microscope in the nerve fibers surrounding the blood vessels in the hand.  &lt;br /&gt;&lt;br /&gt;I personally don't have particularly painful hands, but what was interesting to me about this study is that they believe that blood that's supposed to be used in a 'reservoir' type manner is not being divvied out appropriately, and that's why we constantly feel like we've been beaten with shovels&amp;#8212;cellular waste is not getting taken out of the system.&lt;br /&gt;&lt;br /&gt;&lt;img src="https://www.dreamwidth.org/tools/commentcount?user=fibro&amp;ditemid=2023" width="30" height="12" alt="comment count unavailable" style="vertical-align: middle;"/&gt; comments</content>
  </entry>
  <entry>
    <id>tag:dreamwidth.org,2009-04-17:86396:1461</id>
    <author>
      <name>kitrona</name>
    </author>
    <dw:poster user="kitrona"/>
    <link rel="alternate" type="text/html" href="https://fibro.dreamwidth.org/1461.html"/>
    <link rel="self" type="text/xml" href="https://fibro.dreamwidth.org/data/atom/?itemid=1461"/>
    <title>fibro @ 2009-12-16T23:54:00</title>
    <published>2009-12-17T05:54:25Z</published>
    <updated>2009-12-17T05:54:25Z</updated>
    <dw:mood>cold</dw:mood>
    <dw:security>public</dw:security>
    <dw:reply-count>11</dw:reply-count>
    <content type="html">Posted by: &lt;span lj:user='kitrona' style='white-space: nowrap;' class='ljuser'&gt;&lt;a href='https://kitrona.dreamwidth.org/profile'&gt;&lt;img src='https://www.dreamwidth.org/img/silk/identity/user.png' alt='[personal profile] ' width='17' height='17' style='vertical-align: text-bottom; border: 0; padding-right: 1px;' /&gt;&lt;/a&gt;&lt;a href='https://kitrona.dreamwidth.org/'&gt;&lt;b&gt;kitrona&lt;/b&gt;&lt;/a&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;I am having trouble. I got a referral from my primary doctor to go to a pain clinic, but my insurance doesn't have anyone within 30 miles of me, so they said they'd approve someone outside the network. But I've called probably 7 or 8 different places (some of them more than once when I got transferred around) and the places I've found either a. don't accept outpatients (inpatient only - hospitals) or b. refuse to even consider taking the approval from my insurance.&lt;br /&gt;&lt;br /&gt;I don't know what to do, and with the weather changing, I'm in a lot more pain than usual. Does anyone have any ideas?&lt;br /&gt;&lt;br /&gt;(Crossposted)&lt;br /&gt;&lt;br /&gt;&lt;img src="https://www.dreamwidth.org/tools/commentcount?user=fibro&amp;ditemid=1461" width="30" height="12" alt="comment count unavailable" style="vertical-align: middle;"/&gt; comments</content>
  </entry>
  <entry>
    <id>tag:dreamwidth.org,2009-04-17:86396:1142</id>
    <author>
      <name>hatman</name>
    </author>
    <dw:poster user="hatman"/>
    <link rel="alternate" type="text/html" href="https://fibro.dreamwidth.org/1142.html"/>
    <link rel="self" type="text/xml" href="https://fibro.dreamwidth.org/data/atom/?itemid=1142"/>
    <title>My life with Fibromyalgia</title>
    <published>2009-05-04T13:07:30Z</published>
    <updated>2009-05-04T13:07:30Z</updated>
    <dw:security>public</dw:security>
    <dw:reply-count>6</dw:reply-count>
    <content type="html">Posted by: &lt;span lj:user='hatman' style='white-space: nowrap;' class='ljuser'&gt;&lt;a href='https://hatman.dreamwidth.org/profile'&gt;&lt;img src='https://www.dreamwidth.org/img/silk/identity/user.png' alt='[personal profile] ' width='17' height='17' style='vertical-align: text-bottom; border: 0; padding-right: 1px;' /&gt;&lt;/a&gt;&lt;a href='https://hatman.dreamwidth.org/'&gt;&lt;b&gt;hatman&lt;/b&gt;&lt;/a&gt;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;I thought I'd start the comm's actual business off by talking about my experience with fibromyalgia.&lt;br /&gt;&lt;br /&gt;&lt;span class="cut-wrapper"&gt;&lt;span style="display: none;" id="span-cuttag___1" class="cuttag"&gt;&lt;/span&gt;&lt;b class="cut-open"&gt;(&amp;nbsp;&lt;/b&gt;&lt;b class="cut-text"&gt;&lt;a href="https://fibro.dreamwidth.org/1142.html#cutid1"&gt;My story...&lt;/a&gt;&lt;/b&gt;&lt;b class="cut-close"&gt;&amp;nbsp;)&lt;/b&gt;&lt;/span&gt;&lt;div style="display: none;" id="div-cuttag___1" aria-live="assertive"&gt;&lt;/div&gt;&lt;br /&gt;&lt;br /&gt;That's an overview, anyway.&lt;br /&gt;&lt;br /&gt;How has fibromyalgia affected you? And what about the people around you?&lt;br /&gt;&lt;br /&gt;&lt;img src="https://www.dreamwidth.org/tools/commentcount?user=fibro&amp;ditemid=1142" width="30" height="12" alt="comment count unavailable" style="vertical-align: middle;"/&gt; comments</content>
  </entry>
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